An Act respecting a national framework on sickle cell disease

An Act respecting a national framework on sickle cell disease. At committee in the 44th Parliament. Senate public bill sponsored by Senator Mobina Jaffer (Independent Senators Group, British Columbia). Requires the Minister of Health to develop a national framework on sickle cell disease, including screening protocols for newborns, treatment access, and research support. Sickle cell disease disproportionately affects Black, Hispanic, and South Asian Canadians; access to newborn screening currently varies by province (Ontario screens since 2006; Quebec since 2013; BC and Alberta have more limited programs).